Wednesday, June 22, 2011

The Waiting Game Begins Again.

Last week we had our genetics appointment. Not a whole lot to report yet, other than that Daylon is on the 5th percentile for both height and weight now, and his head circumference is in the 10th percentile.

There are some specific tests that they are running, most of which are too technical and involved to go into at this point. If the tests reveal a genetic issue, I'll try to explain that specific issue in a future blog.

They did say that it is possible that the neutropenia and short stature are not related at all and that he could just be growth hormone deficient. Granted not classic growth hormone deficiency, but growth hormone deficient on some level.

So, Daylon and I both had our blood drawn and now we get to sit and wait for 3-4 weeks for the results. Once the testing comes back we will decide where to go from here. It may involve more testing and it may not, but at least we are finally on the road to getting the answers that we need as to why Daylon is the way he is and can prepare for any obstacles that we may or may not face down the road.

At least we know for a fact that the growth hormone is helping.

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