We talked about the use of growth hormone with his sleep apnea and there is not a lot of research out there as far as what those risks impose. We do know that there have been 4 or 5 deaths reported, but those children had very low muscle tone, were obese, and had Prader-Willi Syndrome. Daylon has none of those things so the doctor does not feel he is at risk.
That being said he does feel that it is reasonable to stop his growth hormone to see how he grows without it. We are to use up our current supply, which is about a month's worth, and then stop. His height growth will be reassessed in six months to see how he is doing.