Monday, July 5, 2010

Only Fifteen Days!!

Only fifteen more days until we leave for MAGIC Convention!! Shawn is going to stay home and work so my aunt is going to come with us!! I am so excited! I have a few applications out for funding, hoping to hear back from them soon. Please pray with us that funding comes through so we are able to go.
This means so much for Daylon & us. This is NOT a vacation to Chicago. This is our opportunity to learn more about what all of this means for Daylon and what we can do to help him. Our itinerary is packed full of education and training. Thursday we have our appointments with Dr. H and Dr. Simmons. We will be able to confirm his diagnosis and make sure we are on the right path for him. We will also be learning about his disorder and the best way to treat it. Friday from 9:00 to 10:30 we have "Treating RSS/SGA", from 10:45 to 12:00 "Not Just About Stature", from 1:00 to 2:30 "Genetics and Epigenetics of RSS: Yes! We CAN Understand!", 2:45 to 4:00 either "The Mystery of IGFD" or "Results of MAGIC's RSS Genetic/Epigenetic Study" and finish out the day from 4:00 to 5:00 with "Ask the Doctors" and at 6:30 dinner to honor George Chmiel, Jr. who has ran two marathons in support of children with growth disorders. Saturday we will have from 9:00 to 10:15 "Seven Strategies for Supporting Siblings" and "Gendocrinology: The Science of Genetics and Hormones for Non-Doctors" and from 12:00 to 1:00 "It's OK to Dream! with George Chmiel". Saturday afternoon we will be able to go to Navy Pier to walk around and have a little free time and Sunday before we leave is MAGIC's Annual Meeting. So as you can see it will be a very full, educational weekend!!

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