We made it to Wheeling on Thursday afternoon. Our hotel is amazing!! We also got to see Darryl Hall of Hall & Oates leaving as we were arriving. That was pretty exciting, to get to see a celebrity while we were here!
Day one was filled with driving, getting settled, and seeing three doctors. We saw Drs. Harbison and Netchine at 5:30, they confirmed Daylon's diagnosis of SGA. Dr. H also recommended looking at a couple of other hormone values including: IGF-1, IGFBP-3 (binding protein for insulin-like growth factor 1), and ALS (which is a carrier for both IGF-1 and IGFBP-3). All of these hormones play an important role in how growth hormone (both natural and synthetic) is utilized and manufactured by the body. We also saw Dr. Simmons (a pediatric orthodontist) who checked Daylon's teeth and said that they looked good with minimal crowding on the bottom and a decent gap on the top to allow for growth, but once his permanent teeth come in, he may need intervention.
Day two was filled with classroom time. Lots of information to consider and mull over, once I have a better understanding I will pass on to you all. I will say that there was alot of information and a lot to think about, along with some other possibilities that need to be considered. I also spoke with the Division Consultant for SGA with the MAGIC Foundation regarding our experiences with our current doctors and she gave me some good feedback to think about and promised some additional information within the next few weeks. All of this followed by an Amazing Dinner Party and Recognition of our MAGIC HERO, George Chmeil, who has raised over $100,000 for the MAGIC Foundation in the last two marathons he has run. To read more about George and his story, including all he has done for MAGIC, go to www.luciandgeorge.com.
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Thank you so much for sharing this information. It will greatly help me when we go to our 1st endo appointment next month. My son is also 2 yrs old. Born SGA and continues to grow slowly. Our sons have a lot in common. I was not able to attend the convention this yr (maybe next year.) Just wanted to let you know that I truly appreciate you taking the time to share the details you have learned. It is nice to know that I am not alone in this difficult journey!
ReplyDeleteThank you so much for sharing what you learned at the convention! It will really help me be more educated for my sons 1st endo appt next month.
ReplyDeleteTheresa,
ReplyDeleteYou are so welcome!! This is the exact reason I created this blog, is to be able to share what I have learned with other parents who are going through the same thing!! Good luck with your endo appointment and please let me know how it goes.
Jean